Life with a boy and his Hypoplastic Left heart Syndrome, now Heart transplant and partial Liver from Aspergillius. Also, a girl and her Tethered Spinal Cord Syndrome, Neuro Endocrine Cell Hypoplasia, Lumbar Hemangioma, asymmetrical gluteal cleft, Pectus Carinatum and two Super Sisters and one yummy baby brother.
Tuesday, April 18, 2017
Ash loves being "Ut sigh" even if all we do is go on a walk. He loves to pick up little treasures. We have a whole bunch of things we have collected on our walks.