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Life with a boy and his Hypoplastic Left heart Syndrome, now Heart transplant and partial Liver from Aspergillius. Also, a girl and her Tethered Spinal Cord Syndrome, Neuro Endocrine Cell Hypoplasia, Lumbar Hemangioma, asymmetrical gluteal cleft, Pectus Carinatum and two Super Sisters and one yummy baby brother.

Monday, April 24, 2017

March 22nd

With not too many things to do for the foundation we decided to utilize the tickets that were given to us and we went to Disney Hollywood Studios for the whole morning... The kids had a blast. 







In honor of the new movie we got this fantastic cupcake at lunchtime.

After this we headed to the pin exchange. This was an opportunity for all of the partners to be able to meet all of the Champions. 
The kids especially loved speaking French to a few of the Canadian supporters. They were astound that the kids had no accent and that they could totally communicate with ease. 


Miss America


We took a quick trip to the pool after.. The pool was like a mile away.. So it was quite the trip to and from.













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