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Life with a boy and his Hypoplastic Left heart Syndrome, now Heart transplant and partial Liver from Aspergillius. Also, a girl and her Tethered Spinal Cord Syndrome, Neuro Endocrine Cell Hypoplasia, Lumbar Hemangioma, asymmetrical gluteal cleft, Pectus Carinatum and two Super Sisters and one yummy baby brother.

Monday, April 24, 2017

March 21st

After breakfast Alex had an interview with Mr. Mick Shannon, who is writing a book and wanted to speak with a few families who have been seen at a CMN hospital. Not only that but Mr. Shannon is a founder of the CMN. He along with Marie Osmond, John Schneider and Joe Lake started the foundation that has proudly raised more than  4.7 billion dollars which is then distributed to 170 hospitals. So if you have ever had a child in one of these hospitals, you have probably benefited from these funds, even if you were able to pay your bills or not. 
After the interview daddy needed to work a bit, he took the kids to the pool while he worked poolside. I needed to hit the store for some breakfast type things that we didn't have to pay an arm and leg for. After returning from the store and the pool there was a huge Champion Welcome party.. Ace Hardware and Chicos gave SWAG and we mingled with a few amazing stars. 




All throughout the hotel, there were signs of statistics and champions. 



Up next was Facebook live with Allie Simpson. He was not shy.

To finish out the night we went to the corporate sponsor and Champion mingle. They had amazing food. And tons to do. The music was LOUD... So we didn't stay a super long time. Plus also, we don't drink....

Wasted on us... The soda was free!!





OH WAIT!! Last minute we decided we wanted to check out Disney Springs, which is like the out door shopping mall.. The Lego store was Gator's favorite part.













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