Life with the oldest sister who loves theater and fashion, a boy who has Hypoplastic Left heart Syndrome, now Heart transplant and partial Liver from Aspergillius, but thinks fishing and electronics rule. The most amazing middle-child-sister-aspiring artist. Also, a girl and her Tethered Spinal Cord Syndrome, Neuro Endocrine Cell Hypoplasia, Lumbar Hemangioma, asymmetrical gluteal cleft, Pectus Carinatum who loves littlest pet shops, American girl dolls, playdates. And one yummy baby brother who has a coarctation and bicuspid valve and thinks super heroes are the best.

Monday, April 17, 2017

March 7th

IHOP is amazing at supporting Primary Children's Hospital. Gator was able to help in his ambassadorship to support Primaries as well. This time they really wanted to talk to him about his siblings. How they have been hospital heroes as well. They had this huge huge pile of pancakes and the butter is real. They even brought out a plate full of bacon which he was thrilled about. Primary Children's does a great job at supporting the patient, however we could give them major major props for how much they do for the rest of our family. 
This is a huge ice sculpture.

Then just to keep it real. Ashy decided that a whole brand new thing of wipes needed to be in the potty.

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