Life with a boy and his Hypoplastic Left heart Syndrome, now Heart transplant and partial Liver from Aspergillius. Also, a girl and her Tethered Spinal Cord Syndrome, Neuro Endocrine Cell Hypoplasia, Lumbar Hemangioma, asymmetrical gluteal cleft, Pectus Carinatum and two Super Sisters and one yummy baby brother.

Friday, April 21, 2017

March 20th Champion Momentum tour

The most incredible opportunity for Alex, over the past year has been, that he is the Utah Champion for Children's Miracle Network. A lot of our amazing family and friends donate all the time and don't even realize what they are doing. But we have been so blessed by Primary Children's hospital and every time you donate to a Children's Miracle Network Hospital you are helping the hospital make a stay (even a short stay) more bearable, not only for the patient, but for the whole family. As the Champion, Alex goes to different businesses that support CMN, to share his story and also thank the businesses. Alex has been a spokesman for quite a few events now and loves to tell people how amazing the hospital is. How the donations make our hospital the BEST ONE EVER!!!! The Momentum Tour was held in Florida. Ryleigh, Alex, Daddy and Me all flew out early Monday morning... The three littles stayed home with the amazing Devin and Chelsea (and Chloe doggie).

Delta is an amazing sponsor of CMN... It was so fun to fly with them.

When we arrived in Florida, Delta had a huge welcome party with balloons, plane tours, Alex even got to sign a star. 

There was much to do at the hotel when we checked in, so we finished out the night at the pool after getting settled.

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