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Life with a boy and his Hypoplastic Left heart Syndrome, now Heart transplant and partial Liver from Aspergillius. Also, a girl and her Tethered Spinal Cord Syndrome, Neuro Endocrine Cell Hypoplasia, Lumbar Hemangioma, asymmetrical gluteal cleft, Pectus Carinatum and two Super Sisters and one yummy baby brother.

Tuesday, May 1, 2007

My turn to brag!

Okay, anyone who knows Jeff (even a little bit); knows he is an amazing daddy, a kind heart and my best friend. I am so lucky he's keeping me around. There have been times when I have leaned on his arm, his testimony and his strength. When we started with infertility and then lost the twins I knew that I could endure anything as long as I had him by my side. This has been true yet again. So lets get it straight who is walking in who's footsteps. Our little man is doing very good today. He sure does have a temper though. It is really sad when he gets upset because he has that big tube down his throat, you don't hear noise, you just see sad little face and mad-mad-mad little feet and hands. I told the nurse he must have a crap attitude..... She looked at me like...um... okay... so then I had to explain that, despite his condition, despite the fact that he has undergone two surgeries and no matter what anyone says.. He doesn't give a crap! He's going to live, he is going to get better, he is strong... that made sense to her. He got the I.V. in his neck out today. He also had a drainage tube removed. They are trying to ween him off some of the drugs, and he is going tinkle really well. The nurses are very obsessive about how much he tinkles, this allows them to judge how much fluid he is getting off. They hope to close his chest tomorrow. This will be a big step to his recovery. His sats have been in the high 70's mid 80's today. He is just plugging along. Ry is doing well also. She had been staying in Orem and having a blast with grandma and papa, aunties, and of course baby Arli. This is all starting to be a little hard on her. Good thing grandma's and papa's can make things better. Our parents have done so much to help us, we couldn't make it with out their help. Jeff and I met some families with heart kids, they are amazing. They have made this all a little easier and I just wanted to cheer for Bryson who got to go home today, and Brinley who we think is darling. Thanks guys. I will let you all know how Alex's chest closure goes. until then.......

9 comments:

Anonymous said...

First of all, I just want to say that both of you are amazing people! You have both been through a lot together. I am so so so happy to hear Alex is doing well and I am happy that Ry is having a good time as well! I think about you guys everyday and you are always in my prayers! I love you guys so much!

Love,

Pink :)

Anonymous said...

It's really amazing how strong little babies can be. I'm very happy for all of you to hear that things are going as well as they are. Thank for updating!

J

diane said...

Okay, okay, I know I'm prejudiced, but you both rock. Jeff has been my miracle since he was born (he will know what I mean) and Brynn was handpicked to become a member of our family!! I love both of you so much. We have gained so much strength from you as we have watched you deal with the ups and downs of having a very sick child, and you have handled it all with grace and dignity, along with a few tears of course. Dad and I are so grateful that Alex is doing well, our prayers are being listened to and answered!! We are so proud of both of you.

Mom Homer

Anonymous said...

I am in tears as I read your update today. Both you and Jeff are amazing people! You are heros to every one of us that have been following along. Your love for one another is the strongest I 've ever had privilidge to witness. Keep it up. Love the Browns

Anonymous said...

We are so happy for you and yours. He has the strength of his mom and dad. We have always felt blessed to have met the Homers. Kade said he is cute and looks like Ry. You are in our hearts and prayers. Looking foward to the udate when he goes home! With our love The Farnworths

Anonymous said...

Jeff and Brynn,
So glad to hear that things are progressing as they should. We are excited to see you guys when we come next week for Brysons appt. It was so great to have you guys there at the same time as us. It made the hospital so much more bearable. I don't think I have ever laughed so much when under so much stress. We love you guys and feel it a blessing to know you. GO ALEX!!!! You are making huge progress keep it up. We are praying for you guys.
Jennylin and Eric

Anonymous said...

Jeff and Brynn,

We are so happy that things are looking up for you guys. We have been thinking a lot about your family and praying for you. Alex sure is a strong little guy. We can't wait to meet him. Please let us know if we can do anything to help you.

Love the Crooks

Terry said...

You are both the best!! You are great examples to all of us! I want to thank you for sharing this experiance with us. I know that our family have grown because of your strengh and your faithfulness. We are so gald that Alex is a little fighter! He has great parent. Thank you both for the great example you are to our family, You guys are truely great friends! We love you all!!
The Gammon's

Anonymous said...

I think that boys really do look better in pink. Andrew, Ashley and I were up at Primary's yesterday for Andrew's every other week chest x-ray and we wanted to come see Alex so bad! I'm so glad to hear he is better. Can't wait for the next update!! I'm addicted.

Andrea Mathis