Life with a boy and his Hypoplastic Left heart Syndrome, now Heart transplant and partial Liver from Aspergillius. Also, a girl and her Tethered Spinal Cord Syndrome, Neuro Endocrine Cell Hypoplasia, Lumbar Hemangioma, asymmetrical gluteal cleft, Pectus Carinatum and two Super Sisters and one yummy baby brother.

Friday, September 21, 2007


Yesterday we got the call that Alex would be Dr. Day's first case which means we had to check in this morning at 6:00 am and leave the house by 5, ewww. I took Ryleigh to Orem where she's having a slumber party with my folks until Saturday, I am grateful things wouldn't be too crazy with her. Then we got up this morning and came to the hospital.. Funny how many great parking spaces there are in the very early morning...Alex was checked and ready to go, dressed in his hospital jammies... They gave him Versed (sp?) PO and would be giving him more later via a I.V... He coughed and sputtered the nasty stuff down... Poor kid, we starve him and he thinks we are finally giving him some sustenance and it is meds... He was funny after he calmed down to just look at us, no smiling, just following us with his eyes. He was fun to smooch cause it was the squishy way little kids and babies are right after they wake up, only he was falling asleep..... they gave us a pager until the procedure is over and we will be here four to six hours after for recovery.....I will update more later as we find out what is happening.


Anonymous said...

I hope things are going well. It's true, that early in the morning you can have just about any parking spot. You'll continue to be in my thoughts. Thank you so much for posting how things are going. Many prayers and hugs!!


Brendalyn said...

Our prayers are with your little family. We sure love you guys. Hope everything goes smoothly.

Anonymous said...

I lit a candle for Alex and anyone who wants to send thoughts, prayers, etc. can light one too. His group is AlexH.

Lots of prayers and hugs,