Praying for miracles

My friend Jenn Pearson says.."I don't know what our little boy's miracles will be, but I will accept them, even if it means a miracle for someone else" Today my little miracle is playing in his excersaucer (generously loaned to us by my brother and his wife). He is with me today, taking the medicines that I hope save his heart and make him strong. He doesn't like to take them... But I told him it will make him feel better. We started all the meds now and after going down to two meds a day, back to six, I just keep thinking this will be part of our life... The Digoxin isn't too bad. We did have to go back on lasix. He is eating well and sleeping a lot. They said all of that is congruent to his heart failure. He sweats a ton, whimpers and needs me to hold him more, but he smiles still and makes me feel like he still loves our family with his whole-little-broken-heart.... The Dr's said that they will call and set up an appointment for an echo in about three weeks, so we will start our waiting game. Ry is in Florida, having a blast. We miss her and can't wait to see the pictures...