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Life with a boy and his Hypoplastic Left heart Syndrome, now Heart transplant and partial Liver from Aspergillius. Also, a girl and her Tethered Spinal Cord Syndrome, Neuro Endocrine Cell Hypoplasia, Lumbar Hemangioma, asymmetrical gluteal cleft, Pectus Carinatum and two Super Sisters and one yummy baby brother.

Monday, September 17, 2007

Getting closer!!!

The weeks certainly seem to fly by as we approach Alex and Ryleigh's "great adventures". Ry is just as funny as ever and keeps us on our toes. The other day she was in trouble for taking off, and daddy had put her new bike in time-out. Well she figured that she would just ride her trike. So she stared to pull on it, the wheel was stuck under the lowest step on the ladder that was propped up against the wall. After much pulling she successfully pulled the trike free only to have the ladder crash onto my car where it left three brand new dents and scratches....The body shop guys will be happy about this one.... Alex looks more blue everyday and I keep thinking I should take him up to PCMC... I am just going to hold off until Friday. He won't have a sedated Echo, which I think is a little weird... We had one all scheduled and they cancelled... Let's just keep our fingers crossed I don't freak out until Friday...

6 comments:

Angie said...

Hey Brynn:
I am praying for you guys! Jake and Ryleigh need to get together and play! I am sure they can teach eachother all sorts of new tricks and ways to get out of trouble, or shall I say into trouble! We are thinking of you guys!
~Angie

The Curtis Family said...

Brynn,
I am not sure if you've been keeping up with Ethan, but he is now home and doing well. I was so surprised at how quickly things move with the Glenn. I am sure Alex will do just great. We will keep you all in our thoughts and prayers. Feel free to call or e-mail me if you have any questions you think I may be able to answer. Hang in there! --Allison

Nora Mair said...

Alex looks blue? Oh how do you stay sane. Hope Friday comes soon!

Preslee said...

its a good thing you didn't kink ryleigh's wind pipe for that I probably would if that was my kid. I'm glad Alex is doin good. Thanx so much for the lip gloss and lotions i wear them all the time I LoVe THEM.
\
love your lil sis Prass

Preslee said...

ps. I figured out the picture thing on the blog so now i have pictures of homecoming stuff so go check it out :)

Jenn said...

I hope all is well, and can't believe we're going to be here again together. I'm excited to see you guys around and no offense, but hope you'll come and go as quickly as Ethan! Have a great night, come see us when you come. We love you guys.