Life with a boy and his Hypoplastic Left heart Syndrome, now Heart transplant and partial Liver from Aspergillius. Also, a girl and her Tethered Spinal Cord Syndrome, Neuro Endocrine Cell Hypoplasia, Lumbar Hemangioma, asymmetrical gluteal cleft, Pectus Carinatum and two Super Sisters and one yummy baby brother.

Tuesday, September 4, 2007

On the scale

On a scale from one to ten; Ten being totally crazy and one being not-so-much, I think Jeff and I are nine. It seems like the Homers have hit warp speed and it doesn't look like we are going to slow down for a little while. With up coming trips, surgeries, and tons of projects to take up all our time, I wonder when I will have a minute to go potty. We just signed Ryleigh up for a little dance class and she can't wait to start. We borrowed a DVD from the library about dance and she seems to pick things up really well. I need to mention a sad thing... She no longer has a problem pronouncing her "sp" sounds... Sad, because I loved to hear her say fooky and farkles....and mostly funge-BOB-Fuare-Pants..... I guess it is because she is going to be three on Saturday..(or was that 13) Alex is doing good he is starting to show the signs of needing this repair. I just hope he keeps packing on the pounds until we go. I need to take pictures of the backyard soon.. It is looking pretty amazing, Jeff and both our dads have been working back there... One other little thing... While we were in the hospital we made some very dear friends.. The Pearson's and the Curtis's, both families are back..... Ethan for his Glenn and Ian for a very scary heart failure... Will you please keep these families in your prayers as we hope for the best and wish them well....


Anonymous said...

I'm glad to hear things are going as well as they are! We think of you often and hope and pray for the best. Thank you for updating your blog so all of us "strangers" can read it and cheer for you. I'll add the Pearson's and Curtis's to my prayers as well.

Big hugs,

The Curtis Family said...

I just wanted to say "thank you" for mentioning us in your blog. As you know, we can use all the prayers we can get. This is such a scary time and I dread going through it again. I am excited to see you at the party. I want to hear if you've heard anything about this next surgery or talk to some families that have been through this before. Any information is helpful. I am glad to hear things are still going well with you and your family. We will continue to keep Alex and Ian in our prayers as well. Take Care.

Jenn said...

Oh Brynn, you are a great person. Thanks so much for all of your concern. I really appreciate your phone calls. It's hard to be here, but it's so nice to see some of the familiar faces. Thanks for everything and we will look forward to seeing you guys at the picnic.