Life with the oldest sister who loves theater and fashion, a boy who has Hypoplastic Left heart Syndrome, now Heart transplant and partial Liver from Aspergillius, but thinks fishing and electronics rule. The most amazing middle-child-sister-aspiring artist. Also, a girl and her Tethered Spinal Cord Syndrome, Neuro Endocrine Cell Hypoplasia, Lumbar Hemangioma, asymmetrical gluteal cleft, Pectus Carinatum who loves littlest pet shops, American girl dolls, playdates. And one yummy baby brother who has a coarctation and bicuspid valve and thinks super heroes are the best.

Monday, November 19, 2007

Do you ever wonder "what the heck did I ever do without my sweet-heart" well I can tell you for me it was NOT MUCH..... Just wanted everyone to know that my "boyfriend" rocks...... I also wanted to add that I messed up the gradient pressure percentages.... It went from 30% to 8%, a much bigger change.... We got Alex all scheduled for his Synigis, I just have to get the okay from Cardiology to do it..... I would hate to have him get sick while we keep getting put off on the surgery.

Ry's dance class gets to ride a float in the parade on Friday.... If it's televised, watch for KC Dance Company and little girls in white hoodies... That's Ry's group... I will of course be posting pictures.... She can hardly wait...

1 comment:

Anonymous said...

We danced with KC dance last year. It's chaos but so fun for the kids.