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Life with a boy and his Hypoplastic Left heart Syndrome, now Heart transplant and partial Liver from Aspergillius. Also, a girl and her Tethered Spinal Cord Syndrome, Neuro Endocrine Cell Hypoplasia, Lumbar Hemangioma, asymmetrical gluteal cleft, Pectus Carinatum and two Super Sisters and one yummy baby brother.

Tuesday, November 13, 2007

Are you sitting down for this.......

Alex had Pro-Op today and what a crazy day we had. We had a sedated echo, 4 try's and one successful IV, weight checks (16 lbs 4 OZs), blood drawn, waiting and then......We found out how serious Alex's surgery will be tomorrow. We are not talking about your run-of-the-mill Glenn. We are talking new info about how things are looking.... Alex will need the following repairs tomorrow... Tricuspid valve repair, Aortic arch repair, two holes repaired, the sano conduit removed, and on top of all that the Bidirectional Glenn....We plan on having him in surgery for six hours. We don't even have a guess time how long it will take to recover. The good thing is that he is bigger at this point and seems to be checking out in other areas. They are still concerned that his heart is not functioning all that stellar, we hope having these surgeries takes some of the work load off the right side.... So we are worried sick and just hanging in there right now.

20 comments:

Quinney Family said...

Jeff and Brynn,

Your family and little Al will be in our thoughts and prayers tomorrow. We know the Lord is mindful of our lives and is in control. We are praying for the surgeons, nurses and staff so that tomorrow they will be ready for yet another miracle at PCMC. The Lord has already blessed your family so much and there is so many more blessings waiting to be had. We love you guys!

Eric and Jennylin Quinney Family

Christina said...

Your family will be in our constant thoughts and prayers tomorrow. Please know how much we love and care for you.

The Davis Family

Andrea said...

Our thoughts will be with you tomorrow. Please let us know if there is anything you need. We will say a special prayer tonight for your family.

Megan said...

I just wanted to let you know that we will be thinking of little Alex and praying for you guys.

Alvia's mom

Megan said...

I just realized I missed the y in Alyvia's name....wow, its been a long day!!

Ashton's Family said...

We care so much for your family. I’m sure hearing this news is overwhelming for you, but the thoughts I had after reading your post is that it a blessing that the surgeons are aware of these things and able to put together a game plan before hand, rather than being surprised once they open Alex up. Hang in there! I can’t even begin to imagine how many prayers are being said for your family. We will keep Ryleigh in our thoughts as well.

The Hardman’s

Lyndee said...

Good luck to you guys! We will be praying for you! Feel free to call if you need anything! - and your pictures are cute! Amanda should have them done soon if they aren't already! :)

Heidi McMillan said...

We are thinking and praying for your family and Alex. I don't know if this will make you feel better but last week our cardiologist told us that it is common during the Glenn to do minor repairs such as fixing the arch, aorta, valves and holes so that they don't have to do more than 3 surgeries. He said they want to do as much as possible to repair the heart sooner rather than later. With that being said, he said it is still usually easier on them than the Norwood because they are stronger and the aorta repair isn't as drastic. I know our son will also need work on his aorta and some valves during the Glenn and they won't fix his AV canal since separating the ventricles doesn't matter. I was under the impression that most kids don't just go in for the Glenn without needing other things repaired and the prognosis is still pretty good. I don't know if that makes you any calmer, but I do know that the Lords angels will be with the surgeons and Alex tomorrow. The Lord is in the details. All our love.

Anonymous said...

Add our thoughts and prayers too.

Hugs,
Joni

Mike and Rebecca said...

Brinley's was much more then the bi-direct glenn as well, it is a huge surgery but much needed, as you know the road will have a few bumps along the way, and we'll be here for every one of them should you ever need us. Alex has gained a ton of weight and is in the best position for this surgery, you have done an amazing job in caring for him and bring him to this point...heavenly father knows Alex well and will have his hand in every move that is made throughout this operation and recovery. You guys are loved by everyone!!!

Prayers,
Mike, Rebecca & Brinley Patton

Anonymous said...

Homers,
Your family continues to be in our thoughts and prayers that all will go well with Alex's surgery. He has made great strides just to be able to have this surgery and so that already shows how tough this little guy is.
Hugs,
Scott & Carolyn Quigley

Anonymous said...

May the Lord bless and comfort you throughout the day today. Our prayers are with you all. We love your family so very much.

Love,
The Luthi Family

Alayna Williamson said...

Brynn & Jeff -

We are praying for you and your little guy. Hang in there and know that our thoughts and prayers are with you!

- Alayna and family

Kami Clark said...

Little Alex and your family are in my thoughts and prayers today. Please let us know if there is anything you need. You are so loved, and so many people are praying for your little family. Try to take a breath, I know how scared you must be. Trust in the Lord and you will be comforted.

The Gatherum Family said...

Brynn and Jeff,
I am Allison Curtis' sis-in-law and I am also friends with Marti Dumas, AND my husband and I met you guys at PCMC in the elevator while we were visiting Ethan. ANYWAYS, wanted you to know that I check your blog frequently and you guys are an amazing family. I draw strength thru you. My thoughts and prayers are with you today. Adrian Gatherum

Anonymous said...

Jeff, Brynn, Alex, and Ryleigh...We are praying for Alex and all of you and the surgeons today. Atticus hasn't forgotten Alex in any of his prayers for weeks. Sunday, he was happy to hear that Alex would be getting the operation. We love you and are thinking about you today. Tara, Dustin and the kids

Anonymous said...

We are going about our daily tasks but really are with you. Our prayers, love and hope are with your entire family. May the Lord be with you, especially Alex and his Doctors. Remeber if there is ANYTHING you need just call, I totally understand the sudden craving for a kitkat bar. Love Mindy Brown and Family

Andrea said...

We are praying for you! Good luck!

Andrea Griggs

Amanda Bishop said...

Jeff & Brynn,

You are in our prayers today for sure (everyday anyway) but especially today. To brighten your day I have some beautiful family pictures for you!! Hang in there!

Anonymous said...

i will be praying for you guys!