Life with the oldest sister who loves theater and fashion, a boy who has Hypoplastic Left heart Syndrome, now Heart transplant and partial Liver from Aspergillius, but thinks fishing and electronics rule. The most amazing middle-child-sister-aspiring artist. Also, a girl and her Tethered Spinal Cord Syndrome, Neuro Endocrine Cell Hypoplasia, Lumbar Hemangioma, asymmetrical gluteal cleft, Pectus Carinatum who loves littlest pet shops, American girl dolls, playdates. And one yummy baby brother who has a coarctation and bicuspid valve and thinks super heroes are the best.

Thursday, November 15, 2007

We are hanging out.

Sorry that I haven't posted yet. Alex did great in the Cath Lab. The Dr.(Dr. Holly) was so nice to give him a little happy gas before actually trying to stick him again. The ballooning itself (done by Dr. Gray)(also very nice)tried multiple times to stretch open that narrow area. So for those who understand. I guess it changed his gradiant pressure from 15%to 8% still not perfect but getting better. We are in the same day recovery over night, which is good because he keeps acting a little funny with his Sats and dropping them as low as the 50's. He has on two probes to monitor it all and they also did a chest x-ray but all looked great... so he must be throwing us off somehow. No, we still don't have a time frame for the Glenn. It's okay we'll just keep hanging out. On one had, I wish I could be here for our other PICU buddies, on the other, I am so happy to be able to be home doing our somewhat normal things....Brynn


Anonymous said...

Thanks for keeping us up to speed on Alex. I don’t understand all about gradient pressure, but I do think that having it lower will make Alex feel better. After Ashton had the Glenn, I think it is the gradient pressure they were referring to when they said that his pressure increased and that is why he became irritable. He wasn’t used to the pressure he had to his head. It took some time for him to adjust, but now he is fine. We checked out your pictures and we are jealous. Those are fun pictures!

Take Care,

Anonymous said...

Your pictures are beautiful! I'm glad Alex will be going home soon. Keep fighting little man!

Anonymous said...

I am so happy Alex is doing well! I have been thinking of you guys lots and lots! I hope you are doing well! If you need anything, please let me know! We should do lunch or somehting when everything settles down!

Anonymous said...

I am so glad Alex is doing well. I hope his stats improve. We are thinking of you.