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Life with a boy and his Hypoplastic Left heart Syndrome, now Heart transplant and partial Liver from Aspergillius. Also, a girl and her Tethered Spinal Cord Syndrome, Neuro Endocrine Cell Hypoplasia, Lumbar Hemangioma, asymmetrical gluteal cleft, Pectus Carinatum and two Super Sisters and one yummy baby brother.

Wednesday, November 14, 2007

No Really, are you sitting?

We got up bright and early this morning... We got everything ready, we arrived at the hospital by 7am were we checked in and proceeded with all the right things... We dressed Alex, took pictures, went to the OR waiting area with him. The nurse brought over some meds and was explaining them to me when the surgeon came over and told her to hold off and wanted to talk to us. Apparently Alex's case was brought up again in his conference. The Dr's and surgeon's agreed that Alex's heart is just not going to handle all of those fixes very well. There are too many things that could and potentially would go wrong. They were able to aggressively come up with a new plan. (so glad they have those) They decided that they wanted to try and do another angioplasty. This time using a larger balloon and hopefully making the coarctation better without the need for cuts and "surgery". This in turn would help take work load off the right side and make function better. So we could do the Glenn with a better result. So we hung out for about an hour... (The computers were down) And found out that the cath lab was all booked up for today.... I begged to let them keep his IV in because it took another 4 sticks to get it today. (The IV team wants to turn and run when they see us. But they are soooo patient and willing to try what ever I suggest.) They did leave it for me and I will be in charge of flushing it and babying it until tomorrow. WHEN, we go back for the Cath and the Angioplasty. Yes, we feel a little crazy by the whole "roller coaster" of events, but we want everyone to know that this is an answer to prayers too. We have been praying that the Dr's and Surgeons would have all the knowledge and understanding to help Alex and us make the right decisions in his behalf... So although we wait yet again..... We wait WITH Alex and know that this smaller procedure will aid in his BIG procedure... They haven't given us any time frames because it would be so hard to judge at this point. We will be in the hospital over night, I think we get to go home Friday, after that we will just take things day by day...

We wanted to also let Noah's family know that we are so sad for their loss.

Also, Good luck Kaidence in figuring all this crazy stuff out.....

All our love the Homers

5 comments:

Heidi McMillan said...

We have been praying for your family, Alex and the team today. So glad to hear that the surgeon came up with a better plan before the surgery. A little boy next to us during the Norwood went in for his last surgery, got some repairs but not the final procedure. It is so much easier when they don't need to do additional open heart procedures. I know was inspired by the Lord. He truly does take care of us and these little ones. I hope that they are able to expand the aorta tomorrow. All our love and prayers for little Alex!

Mindurs said...

I am so glad to hear little Alex didn't have to have such a complicated surgery. I hope tomorrows procedure makes his heart stronger and more ready for his next surgery. We will continue to keep sweet little Alex in our prayers. We love you guys! The Franci Fam.

berrymom said...

We have been praying for you. I know all the prayers and faith will help the doctors to know what to do. We will continue to pray and think of you. Love, The Berry's

Djinni said...

This is a wonderful answer to prayers, I prayed for the same thing last night for Alex. I am so relieved the doctors listened to the still small voice too. I am very thankful for very careful doctors at Primary Children's. I hope you can sleep a little better knowing that everything being done is in Alex's best interest. I feel much better knowing that they have a less invasive plan in mind. I'll continue to pray that all goes well for Alex tommorrow.

Djinni

Kenny & Michele Kingsford Family said...

Oh Brynn, I'm so relieved that they have a new plan! The previous one seemed so agressive with Alex's current function and I was so worried all day. Prayers do work so we'll keep sending them your way! Good luck with everything tomorrow.

Michele