Life with the oldest sister who loves theater and fashion, a boy who has Hypoplastic Left heart Syndrome, now Heart transplant and partial Liver from Aspergillius, but thinks fishing and electronics rule. The most amazing middle-child-sister-aspiring artist. Also, a girl and her Tethered Spinal Cord Syndrome, Neuro Endocrine Cell Hypoplasia, Lumbar Hemangioma, asymmetrical gluteal cleft, Pectus Carinatum who loves littlest pet shops, American girl dolls, playdates. And one yummy baby brother who has a coarctation and bicuspid valve and thinks super heroes are the best.

Tuesday, October 21, 2008

Hanging tight

we are just hanging out today, nothing major going on... Yesterday the cultures came back positive for C-Diff.(What a surprise, Right)Nothing else seems to be out of normal. He did have to go back on O's last night. But is off again today, and seems to be holding fine. He also "icked" again yesterday after eating a whole bowl of Mac-n-cheese.... Wow he didn't even chew it... Just swallowed the stuff whole... That was probably really nice coming back up... So we are sticking to almost the same diet as yesterday before he icked- Yogurt, chicken noodle soup and crackers.... I have had some very lovely meals at the RC (Rainbow Cafe'). Jeff went back to work today and Ry has been having the time of her life with her Terry-mommy and the her cousin Arlington... Thanks guys for the help.... Well it doesn't seem like we are going to get outta here today... So we will update later... I think I am going home tonight so I can sleep tonight.. Love the nurses/hate the interruptions...


Anonymous said...

hope you can get some sleep and everyone can go home real soon!

Anonymous said...

I hope that little guy gets to feeling better really soon!