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Life with a boy and his Hypoplastic Left heart Syndrome, now Heart transplant and partial Liver from Aspergillius. Also, a girl and her Tethered Spinal Cord Syndrome, Neuro Endocrine Cell Hypoplasia, Lumbar Hemangioma, asymmetrical gluteal cleft, Pectus Carinatum and two Super Sisters and one yummy baby brother.

Monday, October 20, 2008

waiting on cultures

Well I just thought that I would update that there is no update and we are just hanging out. No sign of going home today. They wanted to put him on some more IV fluids to replace his stools... Since he still has some pretty wicked FP (Fast Poopies). He vomicked yesterday but hasn't today... Ry is happy hanging with Papa Homer today, she went to school and is trying to keep with her normal routine... We have such great family and friends... Always willing to help in a pinch... I am always blown away by the well wishers and sweet service... Thank you... The "REnts" are hanging in there... We are old Pros now. We would rather be here getting better than home doing laundry from all the poop-tastrophies...... N-E- Ways... Wishing everyone a happy Family Night.... Jeff, Brynn, Ry, and the Gator Man...

6 comments:

Gourley Fam said...

Sorry, I did not know you were back in the "expensive hotel". Gator will be in our prayers tonight!
Heart hugs,
Emily and Mike

Andrea said...

You amaze me. I am always impressed with how positive and happy you are, no matter what is going on. I am thinking of your family today and I hope Alex gets better quickly and you have some answers soon! Sending my love,

Andrea

Michele said...

Well bummer, we missed you guys by a few days at our favorite hotel on the hill!! Best of luck to finding out what is wrong with your cute little guy. BTW, I love the chub on him!!

Lance and Raegan said...

Oh, I just love you and your family. How can I help you? If you weren't so dang cute you wouldn't have so many people so willing to serve you!! SO, if i can watch Ry or take her or pick her up please let me know! Hope everything gets better with Gator!

Aimee and Hardy said...

We're praying for a speedy recovery for Alex. Hopefully you'll be home very soon, but if you're still around on Friday we'll be up there all day for Jack's echo. We can have a mommy version of that play date we keep trying to make happen.

Andrea said...

Hang in there. You'll be in our thoughts! (I am sure Papa Homer is pleased as punch to have his sweet granddaughter around!) love you all!