Life with the oldest sister who loves theater and fashion, a boy who has Hypoplastic Left heart Syndrome, now Heart transplant and partial Liver from Aspergillius, but thinks fishing and electronics rule. The most amazing middle-child-sister-aspiring artist. Also, a girl and her Tethered Spinal Cord Syndrome, Neuro Endocrine Cell Hypoplasia, Lumbar Hemangioma, asymmetrical gluteal cleft, Pectus Carinatum who loves littlest pet shops, American girl dolls, playdates. And one yummy baby brother who has a coarctation and bicuspid valve and thinks super heroes are the best.

Saturday, January 3, 2009


So is anyone having a hard time when you write the date? I have been messing up and putting '08. I'll get it... Any way yesterday marked the one year anniversary of Gator's Glenn. He is doing very well. So to celebrate I took him to the Dr. for his Synigis injection and found out he weighs in at 22 lbs. He also has an inner ear infection, which means antibiotic. I hope he doesn't have a c-diff flare up. I have been wondering if he has had one because he hasn't been sleeping all that well. YUCK! Ry is so funny, mommy is antsy to have her back in her routine of school and sleep. Winter break is taking it's toll on our little girlie. I can't wait for the structure but I will miss my buddy while she is at school and dance. Today is my mom's 20-something anniversary of her 29th birthday. Way to go MOM!!! we sure love you!

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