Life with the oldest sister who loves theater and fashion, a boy who has Hypoplastic Left heart Syndrome, now Heart transplant and partial Liver from Aspergillius, but thinks fishing and electronics rule. The most amazing middle-child-sister-aspiring artist. Also, a girl and her Tethered Spinal Cord Syndrome, Neuro Endocrine Cell Hypoplasia, Lumbar Hemangioma, asymmetrical gluteal cleft, Pectus Carinatum who loves littlest pet shops, American girl dolls, playdates. And one yummy baby brother who has a coarctation and bicuspid valve and thinks super heroes are the best.

Thursday, January 1, 2009


It's been so hard on the little guy to take out the morning nap... This will seem funny to some, "heart" kids cross their ankles a lot. We have multiple pictures of Gator doing this.

Christmas Eve food and fun. I love that Gator put the plate on the floor and stood on it. We certainly had a white Christmas.

falling asleep about any where. Those Dorritos couldn't even keep him awake.

Posted by PicasaNew Years with my family, now you see where I get the "ham". Marc, Lis, and Arli are not pictured, but partied with us too.