Life with a boy and his Hypoplastic Left heart Syndrome, now Heart transplant and partial Liver from Aspergillius. Also, a girl and her Tethered Spinal Cord Syndrome, Neuro Endocrine Cell Hypoplasia, Lumbar Hemangioma, asymmetrical gluteal cleft, Pectus Carinatum and two Super Sisters and one yummy baby brother.

Thursday, January 1, 2009


It's been so hard on the little guy to take out the morning nap... This will seem funny to some, "heart" kids cross their ankles a lot. We have multiple pictures of Gator doing this.

Christmas Eve food and fun. I love that Gator put the plate on the floor and stood on it. We certainly had a white Christmas.

falling asleep about any where. Those Dorritos couldn't even keep him awake.

Posted by PicasaNew Years with my family, now you see where I get the "ham". Marc, Lis, and Arli are not pictured, but partied with us too.