Life with a boy and his Hypoplastic Left heart Syndrome, now Heart transplant and partial Liver from Aspergillius. Also, a girl and her Tethered Spinal Cord Syndrome, Neuro Endocrine Cell Hypoplasia, Lumbar Hemangioma, asymmetrical gluteal cleft, Pectus Carinatum and two Super Sisters and one yummy baby brother.

Tuesday, July 13, 2010

Lake Powell

Sorry kids we are not a traveling family. So opportunities like these are few and far between. However, when we do have an opportunity to enjoy time with each other away, we REALLY enjoy each other. Lake Powell was amazing and beautiful. This was the first time both daddy or I had ever been. The water was warm-ish and the red rocks are to die for. Ry tried surfing, tubing and wanted to swim all day. Gator loved going fast in the boat and digging the sand/dirt. He tried tubing with daddy but preferred to stay dry. Ry really wanted to try skiing, but we ran out of time this trip. We also had our fishing supplies and tried for about an hour but none of us caught anything. One of our favorite things about this trip, was the "adventure" we found a branch off from the lake and went in on boat as far as we could. Anchored the boat, put all the kids in the tube while the mommies and daddies pulled and pushed the tube until the water ended. Then we got out and hiked in until there wasn't any where else to go. The kids played in the cool sand and loved it. We can't wait for another trip like this.
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1 comment:

likeschocolate said...

Looks like you guys have been having fun. I have been meaning to call, but then I just get busy. Anyway, did you see the story on Bosten Med with a child with HPLH. You can go to and click on episodes of Boston Med episode 2. It is a great story.