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Life with a boy and his Hypoplastic Left heart Syndrome, now Heart transplant and partial Liver from Aspergillius. Also, a girl and her Tethered Spinal Cord Syndrome, Neuro Endocrine Cell Hypoplasia, Lumbar Hemangioma, asymmetrical gluteal cleft, Pectus Carinatum and two Super Sisters and one yummy baby brother.

Friday, August 26, 2011

Recovery day 1 part 2

We've had a pretty busy day. After all that talk about eating and drinking he won't eat. Well he will, just not that much. He took some good naps, rode in the wagon, we took out the catheter, and he rested. We had some fun visitors today. Heart mommy Diane, Annie Beth, Jen and Nate, a couple of our past nurse friends, Grandma and Papa, best of all Ry and Munchie. We miss those two girlies a bunch. They are so important and brave! Munchie wanted to dive on Gator and play like always but he is still so sleepy. We left him to rest and hopefully get some ourselves.

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