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Life with a boy and his Hypoplastic Left heart Syndrome, now Heart transplant and partial Liver from Aspergillius. Also, a girl and her Tethered Spinal Cord Syndrome, Neuro Endocrine Cell Hypoplasia, Lumbar Hemangioma, asymmetrical gluteal cleft, Pectus Carinatum and two Super Sisters and one yummy baby brother.

Friday, August 26, 2011

Recovery day 1




Last night Gator didn't sleep much. He wanted to eat and drink very badly. But this morning he is doing pretty good we have Adrianne again as his nurse, did I ever say how much we love some of our nurses. Gator's goals for today are to rest rest rest and to pull lines. They already pulled out his IJ in his neck and his RA so most of the big gun meds are off. When we ask him how he is he said, "I am a little bit sick and really itchy, and that is it". He had a couple of bites of watermelon and oranges for breakfast, also a few sips of raspberry smoothie. He has little naps here and there but says he wants to play and go home. We are trying buddy!

3 comments:

Terry said...

Good for him!! I am so glad he wants to go play!! that is what we all want to do. So glad things are moving along. Yeppie Tell him way to go from Moo Moo and Terry!

Kyle and Alli said...

He sounds like he is doing so well!! His IJ and RA lines are already gone??! Wow. Keep it up Gator! What a sweet little boy to communicate so well what he is feeling. I hope that they can continue to keep his pain managed well so that he doesn't get super cranky!

Karen Groesbeck said...

Hope each day gets better!