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Life with a boy and his Hypoplastic Left heart Syndrome, now Heart transplant and partial Liver from Aspergillius. Also, a girl and her Tethered Spinal Cord Syndrome, Neuro Endocrine Cell Hypoplasia, Lumbar Hemangioma, asymmetrical gluteal cleft, Pectus Carinatum and two Super Sisters and one yummy baby brother.

Thursday, August 25, 2011

Update #5

We are finally back with our man. I don't really know what I was expecting to see. Maybe I thought he would look similar to when he was a baby all puffy and such. He looked better than I imagined. He still needed to be intubated because of his blood pressure, but he worked really hard to get that tube out. One thing I really noticed was how twitchy he was. That was from the anesthesia. He has a ton of monitors still and as soon as I walked into the CICU it had the very same smell that I remembered. Not a bad smell, just a super clean-coffee-adhesive smell. Gator tried to talk to us while intubated. You can't talk with that big tube down your throat so he resorted to shaking his head to tell us yes or no. Finally we got to take it out and the very first thing he said is "where's my dad?" Of course it is cause daddies are the coolest! Now he is totally fixated on having a drink. He just keeps saying over and over "okay I am ready for that drink now!"
Well more later.

17 comments:

Nathan said...

I'm so happy for you guys and for Alex. We thought the same as you about the swelling. Ashton had a lot of lines in but his color was so good. We went on vacation to Moab this summer and he hiked around in the heat and kept up with everyone. We were shocked at how good he did. I'm just so happy for you to be on the other side of this surgery. I promise you that Alex will make up for any energy he didn't have before this surgery. If you're still around next week Ashton has an apt. on the 2nd at 11am. Take care guys.
nathan83404@gmail.com

likeschocolate said...

So so happy that gator is doing so well. I think I have eaten my way through the day because I was so nervous. Give that gator a kiss from us.

Elk Horn Specialties said...

soooooooooooo sweet! We love that kid! and of course the rest of the family as well!

Lacey said...

Oh sweet Gator! It sounds like he woke up from a nap, not a major surgery. Great job little man!

Gee Family said...

Yay! Love that he is talking! Hugs.

Michele said...

Sending thoughts, love and prayers your way for a speedy recovery! Go Gator!

Mom of three ♥ said...

Glad that things have gone well thus far!

JN Designs said...

What a little sweetheart! He is such a little fighter. We love you all tons and will keep praying for a speedy recovery.

Satomi said...

Yey! Skyler has been asking us(Rob and I) ALL DAY long wanting to know how it went. I finally had a time to sit and read your blog to him and he felt relieve, "Oh, good. Now I can go to bed..." He's been praying for him every single prayers. Sky had very minor surgery 3 times in the past and he knows how uncomfortable coming out from "sleepy meds"(Sky gets bad reaction), so he was concerned. We'll keep you all in prayers. Even little things, let us know how we can help :) Satomi

One Happy Heart Family said...

Ugh!! That was the hardest part with Kylie she wanted a drink so bad, coming out fo the anethisia was HORRIBLE!!! It took all night I finally had to accept the fact that it wasn't "her" yet, & had to leave!!! Praying for a smooth night!! He is such a CUTIE!!! Lots of love!!!

Annie Beth said...

I am going to stop by and say hello tomorrow if that is ok..

Annie Beth

Jake & Stephanie Ellinger said...

I left a message on IHH's facebook page about Gator having his surgery today and sending him well wishes. After Brytten's comment about respecting other people's privacy, I just wanted to make sure that I didn't overstep my bounds. I didn't mention him by his "real" name, but I didn't ask for you permission to post. I hope I didn't overstep my bounds and if I did I want to apoligize.

I'm glad to hear he is doing well. Hopefully the next couple of days continue to get better and better.

Melanie said...

So happy to hear that things have gone well so far. I have been thinking about your guys today. Hope things continue to go well and you are able to go home sooner than what you expect.

The Hood's said...

I'm so glad he's done so well. I hope he had a fun night "playing" with Chad! So nice to see your smiling face here! Good luck Gator!

Anonymous said...

What a sweetie that little man is!--LuAnn

Mike n' Annie said...

Ohhhhh...I'm so glad things went well. We"ve had you guys in our prayers for the past few days and will continue to keep you there. Hoping for a great recovery!! Let us know if we can help with anything. We love you guys!

~Mike n' Annie~

Heidi McMillan said...

daddy's are the best! Glad that he seems to be doing well. All our prayers for a smooth Friday.