Life with a boy and his Hypoplastic Left heart Syndrome, now Heart transplant and partial Liver from Aspergillius. Also, a girl and her Tethered Spinal Cord Syndrome, Neuro Endocrine Cell Hypoplasia, Lumbar Hemangioma, asymmetrical gluteal cleft, Pectus Carinatum and two Super Sisters and one yummy baby brother.

Thursday, August 25, 2011


He's done! We just had a long chat with Dr. Burch his surgeon. I hope I remember everything.... He said Gator had a ton of scar tissue that he had to carve
out or around the heart, he also noticed he had a bunch of collateral veins, let me explain what those are for those who might not understand. Collateral veins are produced by the body when it thinks you are not getting sufficient blood supply from a certain part of the body. So it will grow other veins to assist in circulation. Unfortunately these veins are thin and not very organized. So that makes these guys unstable. So Dr Burch had to coteries these before working on his heart. Once he started the Fontan he attached a size 20 conduit and also was a little aggressive with his fenestration giving him a 4 instead of a 3.5 the bigger the fenestration the better his pop off is. He mentioned he was having dips in blood pressure which is part of recovery and also one thing he has never had an issue with before is his sinus. He dropped out a couple times and so we talked about a pacer in the sometime/not sure when future. We will cross that bridge when needed. They are working on getting him to the CICU and managing his pain. We will keep you all posted and I will most likely revise this when I my brain fog clears.


Andrea, the little collector said...

Glad to hear everything went smoothly. You are in this families thoughts and prayers. (Having a little reunion and my sweet sister mentioned the surgery so we're ALL praying for you all...Gator especially!)

Terry said...

Thanks for the updates!! I have been thinking and praying for him all day!! I can't wait to come see him and hug you and Jeff.

The Simmons Family said...

SO glad things went well. Praying for Gatorman to have a quick recovery. All the post Fontan kiddos have some type of arrythmias after the Fontan, so maybe it will resolve itself and a pacemaker won't be necessary.

Glad your day is almost over. :)