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Life with the oldest sister who loves theater and fashion, a boy who has Hypoplastic Left heart Syndrome, now Heart transplant and partial Liver from Aspergillius, but thinks fishing and electronics rule. The most amazing middle-child-sister-aspiring artist. Also, a girl and her Tethered Spinal Cord Syndrome, Neuro Endocrine Cell Hypoplasia, Lumbar Hemangioma, asymmetrical gluteal cleft, Pectus Carinatum who loves littlest pet shops, American girl dolls, playdates. And one yummy baby brother who has a coarctation and bicuspid valve and thinks super heroes are the best.

Monday, April 2, 2012

Babes in flight

 One of the neat things about daddy is, it doesn't take much for him to be the entertainment committee! The kids could crawl all over him for hours... Sometimes I can tell Gator needs to.... like.... kick or hit or wrestle something. I am not really cut out for that business. I will let dad be in charge of that. Much to Munchies delight, they let her play too. Ry wants to be thrown in the air... She is just getting so big that it doesn't work so good.
 We have nice vaulted ceilings, perfect for this event.
 She loves this activity so much she will tap Daddy's arm and sign more, more, more....
 Gator couldn't fly nearly as high. Daddy manages to grab him near his belly and it has never bothered his incision sight.
 Can you see Munchies arms... She is ready for her next turn.
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