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Life with a boy and his Hypoplastic Left heart Syndrome, now Heart transplant and partial Liver from Aspergillius. Also, a girl and her Tethered Spinal Cord Syndrome, Neuro Endocrine Cell Hypoplasia, Lumbar Hemangioma, asymmetrical gluteal cleft, Pectus Carinatum and two Super Sisters and one yummy baby brother.

Tuesday, May 13, 2014

Bees game 05/09/14

Our heart group got tickets to the Bees game and it was soooo much fun. Gator was so excited because his Coach pitch rec team was part of the Bees Jr. Which meant he had a hat and shirt to wear to the game. He wanted to catch foul ball too. He loved visiting with friends and hanging out. He never did catch the foul ball, but our friend Mimi mentioned to the opposing team that he really wanted to catch a ball and he was waiting for a new heart and those sweet men made it happen. 
Getting ready..
Here it comes, he's got his foam finger ready.
Score!!!!
Yeah it was THAT cool. 


This sweet friend is Landon "Lion", cool that we have a Lion and a Gator... He made this special bear for Gator. The very cool blue bear has slept with Gator ever since he came home with him. The neat thing about Landon is on the day of the Bees game it was Landon's heartaversary... He is a transplant survivor.  Not only is he a survivor, but he is a pioneer here in Utah, his heart blood type did not match his body blood type. He is amazing, and proof obsticals can be overcome. 

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