Life with a boy and his Hypoplastic Left heart Syndrome, now Heart transplant and partial Liver from Aspergillius. Also, a girl and her Tethered Spinal Cord Syndrome, Neuro Endocrine Cell Hypoplasia, Lumbar Hemangioma, asymmetrical gluteal cleft, Pectus Carinatum and two Super Sisters and one yummy baby brother.

Thursday, May 29, 2014

Rough day

About 2:45 am we got a phone call that Gator was having a hard time with bleeding. His proceedure had gone well and he was doing great when we left him for the first time alone for the night. He was even out of ICU and on the recovery floor.  
This was certainly a turn we hadn't seen. He continued all day with yucky gushing blood. We tried every trick and it came down to taking him back to the OR. We are hoping this will take care of everything.. We haven't heard yet. 
Luckily we have had some fun distractions. Miss Bobbi from school came and brought him Foxy Loxy!! Miss Hollie and Miss Natasha came with a huge bag of fun things. He is so excited. He is in good spirits other than he is hungry and thirsty.. Very thirsty.. And tired from lack of blood. 
* I have pictures but I don't think it's appropriate to post them.. 

I do have a picture of a ceiling tile of a little girl we love. 


likeschocolate said...

Praying for Mr. Gator! Hugs from the south!

Melissa said...

I second that!