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Life with a boy and his Hypoplastic Left heart Syndrome, now Heart transplant and partial Liver from Aspergillius. Also, a girl and her Tethered Spinal Cord Syndrome, Neuro Endocrine Cell Hypoplasia, Lumbar Hemangioma, asymmetrical gluteal cleft, Pectus Carinatum and two Super Sisters and one yummy baby brother.

Sunday, May 25, 2014

Home bound primary

Grandma came to be with Alex while we went to church. She pretty much rocks. And because he has the greatest primary teachers ever, this is how he did his classes today.. The out pouring of love and compassion from everyone is overwhelming.. Thank you all so much. 

All dressed for church, except no stuffy socks and shoes:) 





1 comment:

Kelleyn Rothaermel said...

Does Alex know he will have to have surgery. I have been trying to talk to Roman about his catherization and when I bring it up! He runs away and says he doesn't want to go to the hospital. Not sure what to do because I don't want him to be scared on Tuesday.