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Life with a boy and his Hypoplastic Left heart Syndrome, now Heart transplant and partial Liver from Aspergillius. Also, a girl and her Tethered Spinal Cord Syndrome, Neuro Endocrine Cell Hypoplasia, Lumbar Hemangioma, asymmetrical gluteal cleft, Pectus Carinatum and two Super Sisters and one yummy baby brother.

Friday, January 23, 2015

Our Love

We know a lot of you love Gator.. We also know everyone is probably thinking this anyway, however they have asked and I obey! For the next week Alex can't have visitors. This will give him a big open time to get feeling amazing. He will also be receiving the plasmapherisis over the next couple of days and this is a big machine that will be doing an important job. He has also started on his immune suppression meds.. These meds are life saving but come with a caution. He can get sick.. Another reason... The less amount of exposure the better. 
Love you all.
UNT

2 comments:

Summer said...

Thinking of you guys and sending love, good vibes, happy thoughts, and prayers for a quick healthy recovery!! Mason did the plasmapheresis also post transplant..... It does magic in getting rid of the naughty antibodies!! Take care of yourself too sweet mama❤️!! Hugs!!

Gee Family said...

Totally understand that he can't have visitors. Excited for when he can and pray we're all healthy!!
xoxoxoxoxoxoxoxoxoxo