Life with a boy and his Hypoplastic Left heart Syndrome, now Heart transplant and partial Liver from Aspergillius. Also, a girl and her Tethered Spinal Cord Syndrome, Neuro Endocrine Cell Hypoplasia, Lumbar Hemangioma, asymmetrical gluteal cleft, Pectus Carinatum and two Super Sisters and one yummy baby brother.

Saturday, January 24, 2015

Recovery day 2

What a great day! Alex is doing well. You don't think about urine and bowel sounds being a super stellar thing until you realize how a finely made human body machine needs a way to get rid of waste and then you cheer when there is output!!! 
He had pherisis today and we plan on taking out his breathing tube.. We hate to rush anything, but he wants that darn thing out.. We will let you know when it comes out! 


Gee Family said...

Great news!! xoxo


Brynn, I love stalking your blog!! We are so happy for Gator. I hope you genuinely feel all the love and prayers so many people are sending to your family!!

Julia Brown said...

Every little step is like a marathon. So happy his little body is running! Hugs and prayers.

likeschocolate said...