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Life with a boy and his Hypoplastic Left heart Syndrome, now Heart transplant and partial Liver from Aspergillius. Also, a girl and her Tethered Spinal Cord Syndrome, Neuro Endocrine Cell Hypoplasia, Lumbar Hemangioma, asymmetrical gluteal cleft, Pectus Carinatum and two Super Sisters and one yummy baby brother.

Friday, January 23, 2015

Update #5

If there are words to describe my feelings, my brain can't recall them. We feel sort of like we've been given the world. Thank you everyone. Our little boy was very very sick, now his new healthy heart is beating  happy in his chest. I hope that our donor's family can feel our gratitude. While there is nothing that I could do to ease their grief, I would hope that they will know how much I will do to take care of my son and to honor and respect them. I don't take this responsibility lightly at all.

 We have been able to see Alex. He looks all pink and even better then I imagine. His tummy is less swollen, it could get bigger because he hasn't really gotten out of the post surgery honey moon stage. His liver that we have been so worried about... Yeah, it's like it's done its own happy dance and is already feeling and looking better.

 Now the critical waiting post op hours. He will have plasmapherisis again today to keep those pesky antibodies at bay. Rest rest rest and work on breathing on his own. Big jobs. I on the other hand am not cut out to be a surgeon.. I can't stay awake this many hours without side effects. While seeing Alex I felt the room spinning and couldn't suck in enough air and finally had to sit down before I ended up on the ground, hahahaha. We are all trying to get a little more rest. If it were just for me I would feel guilty not being right by Alex, but his baby brother or sister really needs me to take care too. And I really need Jeff for all of us. 
UNT 

14 comments:

Andrea said...

So amazed at your strength. My kids were so happy this morning when I told them what had happened overnight. Alex is such an incredible boy. Wishing you a relaxing, restful day. Thank you for the updates. Love and prayers to the Homer family.

Melissa said...

HOORAY! We love seeing your updates and hearing about this wonderful miracle! Get some sleep! :)

The Fergy Bunch said...

We are so happy for you all my children have been praying for him every day fir months now and were so happy heavily father heard all their prayers.

Erin said...

So so happy for you guys right now!

Lauren M said...

I honestly had a dream just a few nights ago that Alex got a heart and then I read all the updates today!!! This is amazing, praying for your sweet boy

Irene said...

Thanks for the updates as we continue to pray and celebrate for your family. Such a miracle. We love you guys!

Simply, Sarah said...

WONDERFUL!!!!!

Anonymous said...

We are sooo happy for your family and Gator!!! Truly a miracle!!! Your neighbors, The Mulqueen's

Chantell said...

So happy for you all!! Fantastic news!!

Djinni said...

Just know that I continually pray for Alex, your family and the donor family. DO not worry about responding, I know you are overwhelmed and will be for a while. Take Care of yourself and get the rest you need. Know that my family and I Love you all and are always in our thoughts and prayers. We are so happy Gator is getting a 2nd chance!

Clifton and Melinda said...

Tears of joy for you and your sweet boy. We have been praying for everyone involved. I hope you can get some rest so you can be with Alex soon. Lots of hugs and loves!

Anonymous said...

So grateful for this miracle for Gator! We love your amazing family! Ann Marie and Family.

Nicky said...

You don't know me, but I have been following your story, and praying and fasting for your little guy. Our 2 month old is a very complicated chd warrior. It's a painful journey filled with more love than I ever could have comprehended. I am so thrilled for gator and your family.

The Perky Seven! said...

The two McDonald family prayers were answered on the same day...Gator getting a new heart, and my sister was matched with a child to adopt! Now a prayer that they both succeed without to many hiccups.