Update #5

If there are words to describe my feelings, my brain can't recall them. We feel sort of like we've been given the world. Thank you everyone. Our little boy was very very sick, now his new healthy heart is beating  happy in his chest. I hope that our donor's family can feel our gratitude. While there is nothing that I could do to ease their grief, I would hope that they will know how much I will do to take care of my son and to honor and respect them. I don't take this responsibility lightly at all.

 We have been able to see Alex. He looks all pink and even better then I imagine. His tummy is less swollen, it could get bigger because he hasn't really gotten out of the post surgery honey moon stage. His liver that we have been so worried about... Yeah, it's like it's done its own happy dance and is already feeling and looking better.

 Now the critical waiting post op hours. He will have plasmapherisis again today to keep those pesky antibodies at bay. Rest rest rest and work on breathing on his own. Big jobs. I on the other hand am not cut out to be a surgeon.. I can't stay awake this many hours without side effects. While seeing Alex I felt the room spinning and couldn't suck in enough air and finally had to sit down before I ended up on the ground, hahahaha. We are all trying to get a little more rest. If it were just for me I would feel guilty not being right by Alex, but his baby brother or sister really needs me to take care too. And I really need Jeff for all of us. 

UNT