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Life with a boy and his Hypoplastic Left heart Syndrome, now Heart transplant and partial Liver from Aspergillius. Also, a girl and her Tethered Spinal Cord Syndrome, Neuro Endocrine Cell Hypoplasia, Lumbar Hemangioma, asymmetrical gluteal cleft, Pectus Carinatum and two Super Sisters and one yummy baby brother.

Thursday, January 29, 2015

Update #8

I can hear his voice!!! Alex's village is amazing.. The nurses run their fanny off making sure every need is managed, doctors fret and worry over him, staff such as techs and housekeeping make sure he is super comfortable.. Every single person works tirelessly and with compassion and gentleness. Yesterday we started to remove lines and tubes, chest tubes, foley cath, pherisis catheters. Today Alex was successfully extubated. He is on high flow but holding his own. It's a much better place than last time. He has been able to talk to me. Asking for Chapstick for his super dry lips, his favorite stuffed dog Bensy, and little pink swabs with water. He is still pretty tired but is happy to have more mobility. We are all doing great as well.. Thank you all for the continued prayers and every other thing that has been done in our behalf.. 

14 comments:

marti said...

Best news I've heard!!! I'm so happy to hear this! Love you guys

Hilarie said...

THANK YOU!!!! This makes me soooo happy for you all!!! He's a fighter!!! THanks for letting us witness this miracle.

Melissa said...

Wonderful update! So glad to hear he is adjusting to his new miracle heart!

Tammy Hopkins said...

Brynn, what an amazing boy you have. I love hearing how he is doing. And I am so happy for all of you that this miracle has come about. How great is God's love for each of us.

Terry said...

Thank you so much for the update! I'm so glad you are all doing OK. You are in my prayers!! LYL

Jennifer E. said...

WOW!!! WOW!!! WOW!!! I bet his voice is just about the sweetest thing you have heard in a long time!!! I am so grateful for those doctors and nurses and techs who have loved your boy for years. Please give every single one of them a kiss from me. ;-)

Melissa said...

Thanks for the update! Sending Hugs! I told Elaine not to leave his side!

Tamra Ashby said...

Yeah! Such windeful news to hear happy progress. My kids ask me to check for updates in Alex everyday. Sophee was with me when we read this and gave a big smile and said "I hope he gets to come home soon."

Rana said...

That is happiness!

Chantell said...

This is such wonderful news!!

Julia Brown said...

Fantastic! After such a long week, I'll bet that voice was the sweetest thing ever! Still praying. <3

Djinni said...

It is good to hear he is making progress. Baby steps are fine, we will keep praying he will progress to the point he can play the way he has always wanted to. Hang In there and take care of yourself. We love you all. You have a wonderful family.

The Redhead said...

Ry came up to my car today after school and did her own cute little happy dance and sang "Gator got a heart yeah, he got a heart yeah, he got a heart yeah......" cutest thing ever!

Summer said...

FANTASTIC NEWS!! High fives for Gator and hugs for mom❤️!!