Life with the oldest sister who loves theater and fashion, a boy who has Hypoplastic Left heart Syndrome, now Heart transplant and partial Liver from Aspergillius, but thinks fishing and electronics rule. The most amazing middle-child-sister-aspiring artist. Also, a girl and her Tethered Spinal Cord Syndrome, Neuro Endocrine Cell Hypoplasia, Lumbar Hemangioma, asymmetrical gluteal cleft, Pectus Carinatum who loves littlest pet shops, American girl dolls, playdates. And one yummy baby brother who has a coarctation and bicuspid valve and thinks super heroes are the best.

Thursday, January 22, 2015

Update #2

Just got our first call. The nurse said that Gator has done very well.. It is all timing right now. We wait patiently for things to be ready. 

At 10:30 the nurse who was with Alex during his very first open heart came to update us saying that they had made the incision and were carefully trying to disect  Alex's old heart away from the scar tissue his body has made from his previous surgeries. A difficult job. But that Alex was tolerating everything well. 


The Redhead said...

so glad to hear these updates. praying for you and for the amazing team working on Gator

Melissa said...

keeping you and the donor family in our prayers

Anonymous said...

Our prayers like everyone's are with all of you---love the deheers

Karolyn said...

Good news! Come on Gator!