Life with a boy and his Hypoplastic Left heart Syndrome, now Heart transplant and partial Liver from Aspergillius. Also, a girl and her Tethered Spinal Cord Syndrome, Neuro Endocrine Cell Hypoplasia, Lumbar Hemangioma, asymmetrical gluteal cleft, Pectus Carinatum and two Super Sisters and one yummy baby brother.

Friday, January 23, 2015

Update #6

He is doing wonderful! He has stayed asleep in order to aid in his recovery, but we are just now talking about letting him wake up a little. He received his second plasmapherisis, finished about an hour ago. I would like to add that we have everyday heroes from those who donate to the blood bank. This couldn't have happened with out those amazing donors too. 
I bawled when I saw this!!! 
The white ones say "Gator's heart day" !!!
I couldn't be more proud to be part of such an amazing school and neighborhood! 

Some of the other small things we are doing. We need to slowly wake up his tummy, so he will be getting some formula through an NG tube.. He also had an Echo to see if everything is still working well. Good news so far. 



Hilarie said...

Soooo happy to hear all of the updates. We've been talking a lot about faith and miracles today. You are an amazing family. We're keeping you all in our prayers as well!!!

Allison said...

How thoughtful of the school! We have been doing a happy dance all day. Grant is anxious to hear each new update, so thank you for taking the time to update Gator's adoring fans!

marti said...

Wow what a day! Full of tears and lots of prayers in gratitude:) we love you guys!

Anonymous said...

What a sweetheart congratulations on you new heart! Rest and recover you have a whole nee work to explore!