Life with a boy and his Hypoplastic Left heart Syndrome, now Heart transplant and partial Liver from Aspergillius. Also, a girl and her Tethered Spinal Cord Syndrome, Neuro Endocrine Cell Hypoplasia, Lumbar Hemangioma, asymmetrical gluteal cleft, Pectus Carinatum and two Super Sisters and one yummy baby brother.

Monday, March 24, 2008

Baby Grace

Today is a big day for Gracie, she is having the Norwood... We just wanted to add our prayers, and if your reading this maybe you could say a little prayer for her, and her sweet mommy and daddy and her very loving brothers and sister. It is a long emotional day and the next twenty four hours after surgery are soooo crucial.... You can leave her a comment of encouragement at

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