Life with a boy and his Hypoplastic Left heart Syndrome, now Heart transplant and partial Liver from Aspergillius. Also, a girl and her Tethered Spinal Cord Syndrome, Neuro Endocrine Cell Hypoplasia, Lumbar Hemangioma, asymmetrical gluteal cleft, Pectus Carinatum and two Super Sisters and one yummy baby brother.

Thursday, March 13, 2008

Work outs!

We are gonna PUMP you UP! We visited the early interventionists yesterday. We are so happy to be as far along as Alex is...They couldn't believe that he eats as well as he does; for a heart kid that is amazing...Plus he is on the higher calorie count formula so it is an even bigger surprise. He has in the past month exploded into doing things on a typical time frame... He has been babbling and can finally say mama!!! we are going to be working on a few things over the next six months to keep moving him forward. Some of those things are strengthening his under used muscles, teaching him ASL (just a few signs), encouraging his left side, because he seems to favor his right (silly boy) Rolling from back to belly, transitioning from back to sitting, gross motor skills, and we will start the very first stages of crawling... Yes, these things we usually take for granted... It was very interesting to have all of steps broken down. We just do them.. With Alex we have to teach him... Julie, also said that she was surprised he sits up so well... I was happy to hear it all... Even the work out parts, now I will know how to help him better... They were so funny about Ry too! They said she for sure didn't need speech therapy, funny little girl "like a teenager trapped in a three year olds body". You would not believe how happy he has been these past days off his leash... he can finally turn his head with out looking weird and pulling his cheek...WOOHOOO!!! Tomorrow is Synigis for Alex and Princess's on Ice for Ry.. Who probably won't be able to sleep tonight... (Maybe that's me).. Have a great blustery day!

P.S. I also wanted to let you all know we are not going to be put away forever for our Target theft...LOL...HEHEHe.. It was a really small clacker toy that Ry let Alex play with, Well he was in his car seat and it fell to the side of him... I usually check those spots but forgot this go around... We ended up walking out of the store with it nicely tucked away... I found it and decided we need to repent and return the dollar item or pay for it, the last time we went I gave the cashier and extra dollar.. No harm done.. The stolen tube of lipstick happened in much the same way, although I don't think my mother-in-law minds all that much... Or at least she hasn't missed it yet...Whew! I feel so much better with that off my chest....


Quinney Family said...

Have fun at Princess on Ice, I am sure Ry is just so excited. I was wondering if Target was going to release the survelliance footage of you on KSL here soon, but I guess you got it all straightend out before they got to that!! :-)

We are always thinking about you guys! We need to get together and BBQ soon!!


Ditaur said...

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