Life with a boy and his Hypoplastic Left heart Syndrome, now Heart transplant and partial Liver from Aspergillius. Also, a girl and her Tethered Spinal Cord Syndrome, Neuro Endocrine Cell Hypoplasia, Lumbar Hemangioma, asymmetrical gluteal cleft, Pectus Carinatum and two Super Sisters and one yummy baby brother.

Monday, March 3, 2008


Well we didn't get the princess wishes prize....Have no fear we are still going... And for free..Our friend in the support group Christina called and was able to get a few tickets. We feel like winners because of her..We are so excited and can't wait to see the princesses ice skating. Plus not only do we get to share this with Miss McKay England (who Ry invited as a special friend) but we will also get to see a bunch of our heart friends too...Thank you everyone who took the time to vote for us...We appreciate it soooo much....


Terry said...

YEA!!! I an so glad you get to go! Every girl needs to see the Princesses! You will have so much fun!! LYL

Pam said...

Gosh, I feel really bad. My first thought when they called us, was CRAP, what about Brynn and Ry!!! I am glad you get to go anyways though.

It was good to see you today. Sorry I was a bit frazzled, it was a rough trip up there, filled full of dorky office people who had no clue what was going on.

Alex looked really good, and Ry was as adorable as ever!!!

Lots of hugs, and I think of you guys often.

Quinney Family said...

I would demand a Recount Brynn!!! Have fun and thanks again for the nutritional support material that was waitng for me at PCMC!!


Jui said...

I voted for her! I'm so glad your family will get to go and with McKay too. Have fun!