Life with the oldest sister who loves theater and fashion, a boy who has Hypoplastic Left heart Syndrome, now Heart transplant and partial Liver from Aspergillius, but thinks fishing and electronics rule. The most amazing middle-child-sister-aspiring artist. Also, a girl and her Tethered Spinal Cord Syndrome, Neuro Endocrine Cell Hypoplasia, Lumbar Hemangioma, asymmetrical gluteal cleft, Pectus Carinatum who loves littlest pet shops, American girl dolls, playdates. And one yummy baby brother who has a coarctation and bicuspid valve and thinks super heroes are the best.

Wednesday, April 2, 2008

Could it be a bigger day?

Today they will try and take Gracie of ECMO--- Our prayers are with their family at this time...

It is uncle Chaison's birthday Yay!!! Happy 22nd (he also recently set a date to be married to cute Jessica)

Today Alex's buddy Kyler is having his Glenn...Prayers going their way too!

We have been running errands and waiting for Alex's PT (Julie) to come... We gotta work on those jell-o legs again.


Kenny & Michele Kingsford Family said...

I'm having a hard time staying focused on any one task today - I'm so worried about both Gracie and Kyler, and their families. I hate "big" days like this w/ no updates! :)


Mama G said...

That would be great! I do not mind having our blog listed under the heart buddies. Thanks for doing that-it means a lot! I hope those jello legs get to working!

Megan said...

I love how you are always thinking of other family's and what they are going through. You are such a sweet family!

Alex looks GREAT!! (:

Tami Acord-Nelson said...

what do you expect? Hes trying to keep those big, fat, sweet, CHEEKS up in the air! Its hard on a guy! Its like working out with weights!
I am blog stalking today. our prayers are flying today, hopefully they will help! Love the pregnancy joke, I am totally calling my neice right now!
Much Love,
Tami and Thatch

Amanda Bishop said...

I just read Gracie's entire blog. I feel so much for these sweet families going through so much. I would love to donate anything (free photography) for any of them at anytime (night or day!). Take care of yourself and your 2 sweeties (& Jeff he is sweet too! ha)

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