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Life with a boy and his Hypoplastic Left heart Syndrome, now Heart transplant and partial Liver from Aspergillius. Also, a girl and her Tethered Spinal Cord Syndrome, Neuro Endocrine Cell Hypoplasia, Lumbar Hemangioma, asymmetrical gluteal cleft, Pectus Carinatum and two Super Sisters and one yummy baby brother.

Monday, April 21, 2008

I made it to ONE!!!!!


It's my birf-day shout hurray!!!! My little crabby guy has a nasty ear infection just in time for his birthday! But he is still a joy!!! We are so excited to be sharing this day with him and know that it took much to get him here... He does so many wonderful things for our family we are so thankful he decided to be part of it...

All about Alex-
My Name is Alex Jeffrey- My daddy loved that name since high school and always hoped to have a boy to give it to. I have my daddy's name as a middle name. I have One big sister that is three and I love her so much..She makes me smile and is so entertaining. I could watch her for hours...Sometimes she calls me DUDE or Bubba or even alex-gator... She lets me try almost all of her treats and food. I have a stuffed doggy that goes almost ever where with me... I love to be outside. It is my favorite thing to do, but, I don't like the grass.. I will put my feet in the air and my hands up high so I don't have to feel how prickly it is. I also love music, when I was little(er) I spent a lot of time at the hospital, I loved listening to music there it made me feel safe. I even have a song written special for me about Me. I am a quick smile and I have the yummiest chubby cheeks.. Sometimes at the end of the day I smell a little sour from all the kisses I get... I am a missionary for my church.. Even at One year old I have taught my mommy and daddy more about prayer and fasting... I help others to remember to talk to Heavenly Father... I am thankful for those prayers too! My mom has seen many miracles and thinks Me and Ry are still her little miracles... I can't wait for another year!!!!
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20 comments:

jenny said...

Oh Brynn, what a sweet post!! He is sooo cute. I am glad he is part of your family too!! I want to munch on those cheeks!!!

The Curtis Family said...

Happy Birthday Alex! We hope your ear infection gets better soon so you can celebrate. You deserve it!

Love,

Your HLHS buddy Ethan (and his mom Allison)

Quinney Family said...

Happy Birthday, almost seems impossible that it has been a year, and yet it seems like it has been a lifetime of a rollercoaster. We are so excited for Alex and hope to see you this weekend. I hope Jennylin has called to say that we want to come down!!

Eric Q

Christina said...

Happy Birthday Alex! Let's get together and play soon...

love your heart friend,
Jacob

Angie said...

Happy Birthday little Alex! You are such a cute little dude! I am amazed at how strong you are in spirit and in health! You look great!

The Carson Family said...

HAPPY BIRTHDAY ALEX!

What a year you've had! You've been an inspiration to us and probably more people than you will ever know. We treasure our association with you and your parents and wish you all the best for your second year.

Jenn said...

Happy Birthday, Alex! We are so happy for you and your family. We hope you have a great time celebrating!
Love,
the Pearson's

Kenny & Michele Kingsford Family said...

We hope you had a great birthday Alex and wish you many more to come!!!

Get better soon!
Love,
Michele & Taryn

Tami Acord-Nelson said...

Happy Birthday Alex!!
Love,
Thatcher

Lance and Raegan said...

Look at those long eyelashes. He is soooooo cute. Happy Bday!

Andrea said...

Happy Birthday Alex! What an accomplishment! You are looking so so so great! Sorry to hear of the ear infection. We hope it is the only one he ever gets.

joey said...

Happy Birthday, he just makes me smile every time I see him, and so do both of you. Your family is an inspiration! =)

Mindurs said...

Happy Birthday Alex! You are such a fighter and an inspiration to us all! We love you and your parents and wish you only the best in the coming year!

Terry said...

Happy Birthday ALEX!!! We all hope you had a great day! Parker is now 16. You only have 15 more years til you get to drive bud! Happy Birthday to you!!! LYL

Heidi McMillan said...

Happy birthday alexgator. Love it. What a great celebration!!

Marie said...

Happy Birthday to Alex! Love him. I saw the card in Dr. Su's office. So cute Brynn! You are darling.

Pinch those cheeks for me!

Ashley said...

Happy birthday Alex!
Ashley

jenica said...

happy birthday special boy!

happy birth-day mama.

xoxo

Brendalyn said...

Happy Happy Birthday Alex Dear. We are so glad that you are doing so well. You have had a hard first year, but we are so happy for you. You are so blessed to have such amazing parents. Brynn, you inspire me to try to be a better person everyday. miss and love you.

Brit said...

Happy Birthday! He is so cute! He's such a little muffin, i just wanna squeeze him :)