Life with a boy and his Hypoplastic Left heart Syndrome, now Heart transplant and partial Liver from Aspergillius. Also, a girl and her Tethered Spinal Cord Syndrome, Neuro Endocrine Cell Hypoplasia, Lumbar Hemangioma, asymmetrical gluteal cleft, Pectus Carinatum and two Super Sisters and one yummy baby brother.

Friday, April 18, 2008

Spring Break

My little sisters came to stay with us for their spring break this week. We had so much going on that I haven't really had time to write it all down.. So I am going to have to give high lights instead of the play by play... Sunday Preslee came so that on Monday when Alex went to cardio I wouldn't have to have Ry with me... then Ave came later that day after taking a trip to the dentist... We played games and watched movies... We painted and played with play dough it was awesome... They helped me run errands and we took a trip out to the down town library, we had a nice culture lesson about homeless... Stinky as they are they have hearts... and rode the fantastic glass elevator that made Pres really sick... Ry talked Ave into laying by her until she fell asleep two nights in a row... and Ry followed her around like she was the princess of home.... and in Ry's eyes someday they will live in a calace (cross between a castle and a palace)... Alex loves his aunties and laughed so hard one night that everyone else laughed too!!! So the pictures are of Ave doing some aerobics and Ry following of course. We did have a nice time bowling... Alex is the champion with five strikes... just kidding... he did love to bowl though... This last one is Pres after her strike... See the X with her arms.... STTTTRRRRIKE!
The girls where so fun and continually making my kids laugh... I bet you didn't know that a tutu looks great as a hat!!! We also did Pres's hair bright red.... And Ave is pushing Alex around in the wipes box... See that look of pure joy on his face.... yeah that was way cool.... Alex's interventionist came out this week as well... She said he is making leaps and bounds... Can you believe it... We thought so many times that we would never get to enjoy diaper wipe box cars with him... he is rolling all around and just doing so wonderful... I truly could not ask for more.... It sure puts things into perspective for us.... what is really important is all the people in these pictures and the rest of our family and friends... nothing we could ever buy could make this profound an impact... So thanks!!! Oh and Pres made breakfast for us two days in row and this morning Ry decided she really likes to dip her toast in egg sauce... MMMMMM good...
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Tami Acord-Nelson said...

You are amazing. The way you keep it together and are so positive all the time. You must have a very strong testimony and faith. I am so impressed by you.
Thatchers mom (TOF)

berrymom said...

It looks like you had SO MUCH FUN! Sisters are the best! Tell Pres I love her hair. I am so glad little Alex is doing well. Loves!

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Joni said...

♪♫ Happy 1st Birthday Alex!! ♫♪

☺ Joni

jenica said...

way cute!

how do you do the pic collage?