Life with a boy and his Hypoplastic Left heart Syndrome, now Heart transplant and partial Liver from Aspergillius. Also, a girl and her Tethered Spinal Cord Syndrome, Neuro Endocrine Cell Hypoplasia, Lumbar Hemangioma, asymmetrical gluteal cleft, Pectus Carinatum and two Super Sisters and one yummy baby brother.

Wednesday, December 8, 2010

Dr updates

Gator First- He went to see Dr. Su on the first of this month. His visit was impressive. We were hoping for good new! We began to warn Gator that he had an appointment coming up and he would ask "Are they going to cut me mom?" I was always happy to say; not this time. He was a little scared of the EKG stickers or leads or buttons what ever you prefer to call them. They have caused pain when removed in the past. I told him we could leave them on until we get home and he could soak them off in the bath. That seemed to be okay with him. We ended up not needing a limited Echo. It is nice to be able to just get away with pictures (x-rays). He did great. The EKG was easy this go around because they used non-sticky stickers. He weighed in at 32 Lbs that is perfect for his surgery weight. Those pounds were hard to put on..WHEW!!! Now we plan that surgery. Dr. Su said to look at our calenders for July or August. I am shooting for August because of everything that happens in July. Yay for being good enough to start looking at a date. Obviously we still have to have the Cardio Cath and Sedated Echo that tells us he is a candidate. From the outside he looks like a perfect candidate

Munchie- She had her appointment today. She was all smiles and coos until we poked her. She weighed in at 12 Lbs and 14 ozs that is the 90th%. She was 23 inches long 90th% too! Her head size is in the 75th%. What a little chubs. It shouldn't surprise me because she love love LOVES to munch!

Ry- hasn't been to the doctor so I don't have anything to say except that she is wonderful.

1 comment:

Christina said...

Love the update. You are doing such a great job helping him put on weight. The pictures are great!