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Life with a boy and his Hypoplastic Left heart Syndrome, now Heart transplant and partial Liver from Aspergillius. Also, a girl and her Tethered Spinal Cord Syndrome, Neuro Endocrine Cell Hypoplasia, Lumbar Hemangioma, asymmetrical gluteal cleft, Pectus Carinatum and two Super Sisters and one yummy baby brother.

Friday, April 15, 2011

Cardiac Cath

Just wanted to give the update of what has been going on around here. We got the call yesterday that Gator wouldn't need to be up to the hospital until 12:00. He did really great this morning fasting. He did ask a couple of times why he couldn't have cocoa marshmallow maties for bressfess. He was frustrated that he could only have sprite to drink. He told me Sprite stunk for bressfess. Papa came to watch the girlies until Grandma Clawson could relieve him. We packed up Bensie, his snugly blankie, his distraction things that Englands and Miss Joey brought, (especially the Nintendo DS his buddy B-man borrowed him) and headed up. He played so well with the toys while we checked in and stood on the scale for weight. He complied to have his blood pressure and pulse ox. He really didn't want to wear the hospital Jammies but he finally did end up wearing them. I had to turn his underpants around because they were on bass-akwards. We then had a long wait because the cath lab was behind. Which we understand, we just don't talk about food and we play and try and stay happy. They finally brought the Versed to make him loopy and happy. It really didn't make him happy, just loopy and tired. He would pick up his arm and roll his head and he said. "Do I get to keep these jammies, I am wearing?" We finally handed him off to the team with a bunch of freekle (freckle) kisses and him giggling. The procedure should last about four hours. So we are going to hang out. Home life is good. The baby is sleeping hours and hours for my mom and so it has been Grom and Ry hanging out. I started to feel panicky a little while ago, thinking it was taking a really long time. Then I looked up at the clock and it had only been around and hour and a half. Not time to stress yet. Thanks for the loves and thoughts.

3 comments:

The Simmons Family said...

We'll keep him in our prayers!! I can't believe all our babies are at the Fontan age.. where did the time go?

Christina said...

Thinking of you guys. Time goes way too slow while waiting in the hospital. Let me know if you need anything! Love, hugs and prayers coming your way from the Davis family!

Kyle and Alli said...

I didn't know you guys were in the cath lab today! I feel for Gator having to fast for so long. What a big boy! I hope that things went well and that you are now in recovery with him getting a good idea of what the plan is for the future!