Life with a boy and his Hypoplastic Left heart Syndrome, now Heart transplant and partial Liver from Aspergillius. Also, a girl and her Tethered Spinal Cord Syndrome, Neuro Endocrine Cell Hypoplasia, Lumbar Hemangioma, asymmetrical gluteal cleft, Pectus Carinatum and two Super Sisters and one yummy baby brother.

Friday, April 15, 2011

The results

Gator did so great. We chatted with dr. Day after his cath. The first thing we discussed was the pressures they like to see this number below 15, Gators pressure was 12. They also like to see his other number the pressure in his heart to be below 7 his was 9. So that number wasn't that great but we think it is because of leaking in the tricuspid. They had to insert the cath in his groin and also in his neck because he is post Glenn. The Glenn surgery makes it so they can't thread the cath into his lungs through the groin so that is why we had to go in the neck. I had to go pump so daddy went in to meet him in recovery. He was so not happy! He is old enough to tell me he was bugged. We couldn't let him move much and he needed to go potty. We kept telling him to just go, he was bound and determined to hold it till he could use the toilet. He was in so much pain from holding it. Finally our nurse let us carry him to the potty and he did a 180 degree change after that he was even pleasant to be with telling the nurse "Fanks dear" for getting him a tissue. He ate a whole bunch of Mac n cheese out of a Emesis basin.yuuuuummmmmyyyy! He really wants to go to the play room but just isn't supposed to move. We think we get to go home at 9:30/10:00. He asked "what if I had another leg?" so we think he is still a little loopy. We are doing great. Check in tomorrow for more news.


J.B. said...

So glad to hear that all is well. Love you guys!

likeschocolate said...

I am glad all went well. We go for an MRI soon. We are going to try it unsedated. I hope it works.

Lance and Raegan said...

Aside from all the good news that everything went well.....I can't help but smile and laugh about the , "Fanks Dear"....he kills me.
And might I mention.....a third arm would be fantastic at times but a third leg....not so sure it wouldn't just get in the way...pass that on.

The Browns said...

So glad to hear things went well. Man I miss you guys! I have been hearing your names so much, I just need to squeeze you! You cant imagine how excited my mother in law is to get her new beautiful cabinets!! I cant wait to see them too. Brynnie, I LOVE how you capture the cute little things kids say and you know just how to spell them so that you can actully hear their cute lil voices say them. Cant wait to see you in a few months! Love you tonz!! Coley

Andrea, the little collector said...

Hooray! Glad things are going well...and that they didn't give him and extra leg along the way.

Anonymous said...

Hey glad things are well!! I love you guys and it cracks me up with the things that they say and you capture!!

P.S. this is Kali Hooker I just pushed anonymous