Life with the oldest sister who loves theater and fashion, a boy who has Hypoplastic Left heart Syndrome, now Heart transplant and partial Liver from Aspergillius, but thinks fishing and electronics rule. The most amazing middle-child-sister-aspiring artist. Also, a girl and her Tethered Spinal Cord Syndrome, Neuro Endocrine Cell Hypoplasia, Lumbar Hemangioma, asymmetrical gluteal cleft, Pectus Carinatum who loves littlest pet shops, American girl dolls, playdates. And one yummy baby brother who has a coarctation and bicuspid valve and thinks super heroes are the best.

Wednesday, August 29, 2012


Nothing like a little fertilizer to freak a mommy out, call poison control and just make sure I am on my toes! All is well. She only tasted not ate!


likeschocolate said...

Glad she is OK! Isn't that the prettiest hair you have ever seen.

Heart Mommy said...

Oh my she looks like this all the time, I don't know how straight hair people manage to look tidy all day!!! And in the back it's cotton candy mess!! Bllaaahhh