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Life with a boy and his Hypoplastic Left heart Syndrome, now Heart transplant and partial Liver from Aspergillius. Also, a girl and her Tethered Spinal Cord Syndrome, Neuro Endocrine Cell Hypoplasia, Lumbar Hemangioma, asymmetrical gluteal cleft, Pectus Carinatum and two Super Sisters and one yummy baby brother.

Tuesday, May 14, 2013

A little confusing!!! Yeah, me too!!

Somehow the last post is out of order... This was almost two weeks ago.. So now May is off oxygen but can't do her MRI until the 24th of May!!

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