Life with the oldest sister who loves theater and fashion, a boy who has Hypoplastic Left heart Syndrome, now Heart transplant and partial Liver from Aspergillius, but thinks fishing and electronics rule. The most amazing middle-child-sister-aspiring artist. Also, a girl and her Tethered Spinal Cord Syndrome, Neuro Endocrine Cell Hypoplasia, Lumbar Hemangioma, asymmetrical gluteal cleft, Pectus Carinatum who loves littlest pet shops, American girl dolls, playdates. And one yummy baby brother who has a coarctation and bicuspid valve and thinks super heroes are the best.

Thursday, May 30, 2013

Puuulllleeeaassseee can I hold May???

When you are as yummy as this little girl you tend to have everyone wanting to nuzzle you!!! It is not super often that a doctors/specialists office calls me to set up an appointment. The pulmonologist that our pediatrician recommended called for that reason, then I was totally bummed to find out we couldn't see her after all because she doesn't accept our insurance. So I guess I will be making the call. I think this lung business is getting to be old. I called our ped the other day thinking we could send all of our equipment back.. Only to have her need it again. I am thankful we had it on hand. She shudders when she breaths, retracts, and turns lovely colors. I almost think it has to do with the weather. Rainy weather= bad breathing days. I also found out I was administering her inhalers wrong. Well not wrong, just not enough medicine. The things you learn. 

1 comment:

likeschocolate said...

She is yummy and I would want to hold her all the time too! Thank you for your gift. That was so sweet !