Life with a boy and his Hypoplastic Left heart Syndrome, now Heart transplant and partial Liver from Aspergillius. Also, a girl and her Tethered Spinal Cord Syndrome, Neuro Endocrine Cell Hypoplasia, Lumbar Hemangioma, asymmetrical gluteal cleft, Pectus Carinatum and two Super Sisters and one yummy baby brother.

Monday, May 20, 2013

Builder Alex

At the school they have an award each month. This month was determination. Alex was chosen to be the builder because he showed determination more than any other student in his class. Because Alex had his big Cardio appointment on this day. Daddy and Papa came early to see the principal present the award to Alex. They must have gotten confused becuase they did it while we were all standing in the hall waiting for them. Such a bummer that we couldn't even get a photo with the principle as he was dealing with another student. So we were just proud for our boy!
We have tried to teach Alex that we don't say "I can't" you just say "I will try" Way to go buddy! 
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