Life with a boy and his Hypoplastic Left heart Syndrome, now Heart transplant and partial Liver from Aspergillius. Also, a girl and her Tethered Spinal Cord Syndrome, Neuro Endocrine Cell Hypoplasia, Lumbar Hemangioma, asymmetrical gluteal cleft, Pectus Carinatum and two Super Sisters and one yummy baby brother.

Friday, October 25, 2013

Gramma has skills

My mom is amazing... She made this tiny maxi skirt... It turned out so cute. I even have it on wrong and it's darling. Ry has her order in for one too. 

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