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Life with a boy and his Hypoplastic Left heart Syndrome, now Heart transplant and partial Liver from Aspergillius. Also, a girl and her Tethered Spinal Cord Syndrome, Neuro Endocrine Cell Hypoplasia, Lumbar Hemangioma, asymmetrical gluteal cleft, Pectus Carinatum and two Super Sisters and one yummy baby brother.

Sunday, November 26, 2017

Extra Life gaming

Children's Miracle Network called Alex to share his story about waking up after his transplant. For those of you who aren't aware of those details, I will give a short retell. Alex had received his new heart and had beautiful color and progress healing from the surgery. Somehow he slipped into ICU Psychosis. He lost his memory of how to do anything and who anyone was. It was heart breaking all over again. One day I was trying to bring him back to us and I thought we could use his iPad to look at pictures of the family. When that didn't work I thought it would be cool to try a game. Pre-transplant he had added a bunch of games to play post transplant so that he could be entertained while he was recovering. Clumsy Ninja was the game I chose to play, even though I had no idea at the time how to play. Which was funny, because him being frustrated by inability to play brought him back. I am no doctor, but I stand to say,  gaming and games bring joy to people, and they may use a different side of his brain and it brought him back to us. So Extra Life gaming is a board game, video game group that raises money for great causes like Children's Miracle Network. That in turn goes to Primary Children's Hospital, which in turn comes right back to kids like Alex and MayLee. To kick off the start of the fund raiser they had Gator come to HQ for the live broadcast. This is similar to a football or other broadcast sports event. You can see a small corner of the broadcast, you can see different games being played, there are tickers ( little boxes with money amounts earned) along with your own game and stats, all on the same screen.
In just the short 15 minutes Alex was on, he raised about 300 dollars for the cause. 









We had a great time entertaining ourselves while we waited for Alex to do his thang. Clearly it doesn't take much. I love Eden and her happiness and silliness. 











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