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Life with a boy and his Hypoplastic Left heart Syndrome, now Heart transplant and partial Liver from Aspergillius. Also, a girl and her Tethered Spinal Cord Syndrome, Neuro Endocrine Cell Hypoplasia, Lumbar Hemangioma, asymmetrical gluteal cleft, Pectus Carinatum and two Super Sisters and one yummy baby brother.

Sunday, November 5, 2017

Oct 19th-20th

Clearly I don't understand his fashion sense. He wants me to let him leave the house in just a hat, diaper, and daddiy's biking shoes........And to church no less. NOPE! 
At least May is ready, We wanted to take a photo of how long her hair is getting. 
 He did let me change him, but I should have reconsidered when he wanted to lick the brownie bowl. Church clothes and brownie mix just aren't a good combination. 

"You got a little right here"
Then he tried to ride his scoot bike... His lip caught his fall. 

The next day it looked a lot better. 

Don't mind the boogie nose. It was hurting him to wipe it. Sooooooo for one day he got a free pass.









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