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Life with a boy and his Hypoplastic Left heart Syndrome, now Heart transplant and partial Liver from Aspergillius. Also, a girl and her Tethered Spinal Cord Syndrome, Neuro Endocrine Cell Hypoplasia, Lumbar Hemangioma, asymmetrical gluteal cleft, Pectus Carinatum and two Super Sisters and one yummy baby brother.

Saturday, October 7, 2017

August 26th

Ward camp out. And boating with Gammon's while daddy rides his bike. My phone died so I have exactly two pictures of our boating adventure. Not even on the boat. The girls loved playing in the sand and Asher loved the treats.


The nasty goose egg wasn't from the skate park the day before. No, he pulled a kitchen chair over on his head. This kid!!!!

Our camping sleep over was also an adventure. Daddy got out late from work, we packed up everything to tent stay. got stuck in heavy traffic, set up camp in dusk/dark. I lost the baby multiple times in the dark and nearly had a heart attack because there was a little creek I am sure he would love to play in. I need a way to keep him close to me. Then we squished but slept great in our "Hilton" tent. Broke camp in the morning and left for boating while daddy needed to get a training ride in. So he road home. But crashed because a bee or hornet got stuck in his helmet and stung him multiple times, he got so distracted with trying to dislodge whatever was ticked to be stuck in his sweaty helmet, that he didn't notice how rocky the ground was and his bike slipped out from under him and he couldn't unclip his feet fast enough. 

Alex did get to surf, so did Eden, Alex also knee boarded, I can't recall if Ry made it up. The boat has such a relaxing effect on babies. They are all squished into their life jackets and the warm wind is soothing and they want to go right to sleep. We did swim off the back of the boat too. 

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